These last couple of weeks have been full of ups and downs. After the nerve block I had done last Tuesday and I have 4 really good days but then a flare-up started up again. I spent the weekend curled up in bed, not sleeping much, not eating at all, and only drinking minimal amounts of water. I felt halfway decent last night which was nice since we had our Thanksgiving dinner last night and I was able to eat/keep down some yummy food which was really nice. I'm back into the flare up today and it's still not as bad as it was this weekend. To add to it I'm slightly dehydrated, I've lost 8 pounds, and I've went down two pants sizes just since November 4th. I'm going to try to force myself to drink more so I can avoid IV fluids. I see my gastroenterologist doctor in a couple of weeks and she will address the weight lost then. The verdict is still out on whether the nerve block actually worked or not but I go back to the pain specialist in the morning. I had 4 pretty much pain free days right afterwards but then the pain came back full force when this flare-up started.
I saw Dr. Amberly Windisch (a urologist) this morning about the kidney and bladder problems I've been having lately. I really enjoyed talking to her where her eyes and attention were on me the entire time because she doesn't do any charting while she's in with a patient. Also, she was very concerned about my GI/other medical issues and makes a huge effort to make sure what she doesn't want to make any of those worse with her treatments.
Dr. Windisch believes I have a bladder issue instead of what my primary care doctor thought was a kidney issues. Dr. Windisch thinks it's probably bladder spasms since my bladder is completely emptying and her guess is when I had those two surgeries in March the surgeon could have knocked into it or moved it to a spot that my bladder didn't like. I mentioned to her that those surgeries were eight months ago but she said that isn't unheard of. Most of the time the body tries to fix it by it's self but when the body isn't able to do it you can get these symptoms. So she put me on a medication that may or may not help but in theory it should and I'm having to keep an input and output chart for the next two weeks. I go back to see her after the two weeks so we can see if my symptoms have improved and talk about plan b if need.
Thinking of you. Sending prayers.
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