I saw Dr. Ari (hematologist) and Dr. Ashmun (gynecologist) this morning and talked to Dr. Witt’s nurse (pain specialist). Both appointments went well besides me being miserable since a flare up started early this morning but the last two days had been amazing with little to no pain, minimal nausea and fatigue.
Dr. Ari thinks that it is unlikely that I have Porphyria but since I have all of the symptoms and it could possible that it is the issue. He gave me a lab order to get done when I am in a bad flare up between today and a month from now when I go back to see him. He’s very excited to have my interesting case and is determined to figure out what he also believes is the underlying issue even if it isn’t Porphyria or a blood issue.
Dr. Ashmun thinks that Dr. Youlikis (previous gynecologist) didn’t have success in helping me because didn’t give either birth control method enough time and tried to skip necessary steps. She said it takes at least 4 months to know if it will help and for my body to get used to it. She wants to avoid the GI system so we are trying the nuvaring again but with different directions then Dr. Youlikis had given me. Dr. Ashmun said she will try to remember to run my case by her husband (Dr. Matt Ashmun at Lexington Clinic) since he is a gastroenterologist before I see her next in December to see if he might have any other ideas for Dr. Martin (gastroenterologist).
Humana denied the approval for the spinal cord simulator and since Dr. Witt dotted his I’s and crossed his T’s before he sent it in he doesn’t believe that appealing their decision. I asked his nurse to ask him about other options and/or a refer to someone who might have new ideas for pain management and she's supposed to call me back after she talks to him.
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