March 30th Update

So we are back at square one with my health problems. The specialist I've been seeing is leaving UofL in May to go to Indy this fall (taking the summer off in between to spend with his kids) and even though he will still be at UofL for another two months he has pretty well already checked out. He was not happy that I had those surgeries even though he was the one that suggested that I have the first one because he thought if I did have endometriosis it could be adding to my GI problems. He said that he doesn't believe that the pacemaker will work for me at all so he said we aren't going down that road again. For the last week I've been vomiting either really late at night or very early in the morning so I've been lucky to get any sleep at all which just makes things worse because not getting enough sleep is my number one trigger. His suggestion to this was to put a port in me and put me on home health until further notice. I would not agree to this because I do not want a port and I had home health for an entire month several months ago and it didn't help at all. Since I naturally drink so much water right now I'm am to keep up with the fluids I'm losing from the vomiting. His only other solution was to take domperidone which I took for several months last fall and it did nothing. Since I turned down both of his options he told me that he didn't know what else he could offer me so even though originally we had planned on following him to his new practice I think we are going to try to see if I can get in to see a different motility specialist. The problem with that is the waitlist for those doctors are very long and we are going to have to travel much further. Since that's really our only option at this point that's what we will be working on even though we really can't afford to do all of that traveling. All I know is this stuff is getting really old, I'm getting worse, and I really wish I could have my life back.......