June 12th Update

I've went downhill quite a bit in the last month so I haven't been on here very much. I'm struggling just to eat and drink because even a sip of water causes horrible pain and nausea plus my normal go to nausea med phenergan (which has been my go to medication for the nausea and vomiting since none of the other meds work for me) is no longer working. I saw my GI doc last week and she doesn't believe the Botox worked and has told me to stop the domperidone since it doesn't seem to be doing anything either. I had another another gastric emptying scan done on Friday to see if there has been any change in my motility since the last one was done in the fall. She suggested trying to eat healthy when I do eat and push the fluids but she isn’t too concerned over my not being able to eat or drink much at all since I’m actually gaining weight than losing it.


She is trying cymbalta now to see if it will help any with the nausea and pain until I go back to see the pain specialist in July (he didn't want to do anything until then to make sure I was totally over the surgeries I had in March and to give the Botox time to work if it was going to).

We have also figured out that my digestive system is going haywire every time I have my period (because it just can't handle the normal ups of downs of women's hormones). So my GI talked to my GYN about stopping my period totally but he would only agree with cutting it down to 4 times a year and has me on birth control pills but it's expected to take 3-6 months on it before my hormones will even out. I saw my GYN on Thursday and he ran tests and figured out that my reproductive system is totally fine so things in that area should even out with time.

For some reason I'm also running a pretty constant fever that ranges anywhere from 99 to 101 but my blood work doesn't show any signs of infection. Day to day functioning is becoming difficult much less exercising or getting out with friends now because between not eating or drinking much, not sleeping very much from the pain and the vomiting I'm just getting really exhausted and weak. It's just getting quite frustrating because I don't want to spend my summer lying around the house because I feel too sick to do anything.