July 18th Update

So I thought I had found a doctor who actually gets it and had some new ideas about where we could go from here but I should have known it was too good to be true. She had gave me medicine to help take the edge off of the pain which did seem to help enough so I could halfway function but now she wants me to go off of it but isn't giving me anything to replace it with. She also told me I needed to talk to my GI doctor about where we go from here even though my GI doesn't have any new ideas and this doctor did! I hate that my good morning hasn't not stuck around because I'm making up for it this afternoon/evening with horrible pain, vomiting, a horrible headache, etc. I just wish I could catch a break because this life is getting really old quickly!!