May 2nd Update

So I went back to see my local GI today for the first since August when I started seeing the specialist at the University of Louisville. The appointment went great and it was so nice to have her taking care of me again since she does everything she can think of to help me with living as much of a normal life as possible while the U of L specialist seemed to want the total opposite. When now have a new game plan like I have been asking for for months. Dr. Martin, my local GI is going to do a procedure next Tuesday where she is going to inject botox into the sphincter between my stomach and small intestine and I should see improvement if any within a couple of weeks if not sooner. The only real side effects are from the actual procedure it's self but even they are minimal. It normally last 6 months but it has lasted much longer than in some people. The way it works is the botox relaxes the sphincter between the two organs so that it is easier for food to flow out of the stomach so it could help both with the reflux issues I have along with the pain/nausea/vomiting issues I also have. A few days after the procedure I will also be starting back on a low dose pf domperidone in the hopes that the combination of the two will help. I go back to see my GI two weeks afterwards and by that time we should know if it worked or not and can figure out a new game plan then if needed.

The last several times I went to see the doctor in Louisville I left discouraged since I just seemed to be getting worse and I really wasn't getting any help from him. Now with my local GI I am feeling encouraged because I know she won't give up even if she doesn't know exactly how to help me.

I also had to end up getting fluids today at the doctor's office because of all of the flair ups I've had lately I've not been able to drink enough to make up for the vomiting I've been doing. My heart rate and blood pressure where pretty high today there and I was running a temp again which is not good but I have not lost anymore weight so that's a good thing. Even though we aren't sure if this is going to work it still is a step in the right direction and it's sure better than the just lets watch things.