September 14th Update

So, we are back to square one again. Tests have confirmed that I do not have Porphyria now. My hematologist isn't in the office today and wants to do some research before calling me tomorrow to discuss where we go from here. Other than waiting on the test results to come back I have struggling quite a lot in the last month. I'm in the worse flare up I've had since December of last year. Severe abdominal pain, nausea, vomiting, exhaustion, dizziness, daily migraines, blood pressure/heart rate issues, weakness, insomnia and fatigue have became my normal. It sucks and is getting really old.